Events from the Data Research, Access and Governance Network (DRAGoN)

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Seminar Series

The DRAGoN Seminar Series runs bi-weekly during term-time. We aim to bring together international experts from two research strands: data ethics and data governance. Every fortnight, two speakers will deliver brief presentations followed by a Q&A session with the virtual audience. We alternate sessions focusing on the ethical aspects of data access and use, and the other session on governance of data. Everyone is welcome!

If you would like to receive email invites for each seminar session, please sign up to our mailing list using the link provided on this page. 

Governance of confidential research data in low- and middle- income countries – introduction of the project and current progress

  • Date: Wednesday 29 November 2023 (rescheduled from 18 October 2023)
  • Time: 18:00-19:00
  • Venue: Online (MS Teams)

DRAGoN has started a project on the governance of confidential data for research use in low- and middle-income countries (LMICs). This project includes a PhD thesis by Pedro Ferrer Breda, which consists of a case study of Mexico’s INEGI (National Institute of Statistics and Geography) and INSP (National Institute of Public Healthcare) to understand data access decisions in Mexico, supported by Natalia Eugenia Volkow Fernandez, INEGI’s Director of Microdata Access. This talk will describe this project’s current progress and explain future plans for the development of support networks for good governance of data for research use in LMICs. Pedro Ferrer Breda and Natalia Eugenia Volkow Fernandez will host this talk.

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Part of the team: Effecting change and sharing power in healthcare settings

Date: Wednesday 6 December 2023
Time: 18:00-19:00
Venue: Online (MS Teams)

Jessie Stanier (UWE Bristol) and Dr Rachel Purtell (University of Exeter) discuss the challenges faced and lessons learned when dealing with patient data for their paper, Part of the team: Effecting change and sharing power in healthcare settings

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Past seminar recordings

Watch the YouTube recordings of past DRAGoN talks  below:

Data Research, Access and Governance Network (DRAGoN)

Inter-disciplinary research which aims to build a sustainable effective research network embracing all aspects of the role, value, use and management of data. 

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